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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 46
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS) Check all Current Age Add to Toolkit Remove
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ) Remove
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a Remove
	Fear of Cancer Recurrence Fear of Cancer Recurrence (FCR7) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Financial Hardship Associated with Cancer Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011 Remove
	Functional Performance Status Karnofsky Performance Status Scale (KPS) Check all Current Age Add to Toolkit Remove
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form) Remove
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30) Check all Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV) Check all Current Age Add to Toolkit Remove
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4)) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34) Remove
	Unmet Needs of Cancer Survivors Survivor Unmet Needs Survey (SF- SUNS) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Anxiety Disorders Screener - Adult Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Anxiety Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Adult Symptom Check List 90 (SCL-90) Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Parent Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Parent Report Version Check all Current Age Add to Toolkit Remove
	Anxiety Disorders Symptoms - Children - Self-Report The Screen for Child Anxiety Related Emotional Disorders (SCARED), Self-Report Version Check all Current Age Add to Toolkit Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Adult The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1) Remove
	Attention-Deficit Hyperactivity Disorder Symptoms - Child The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) Remove
	Depression Screener - Adults Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Depression Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Adult The Quick Inventory of Depressive Symptoms (QIDS) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Child Mood and Feelings Questionnaire (MFQ) Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Depression in Dementia The Cornell Scale for Depression in Dementia Check all Current Age Add to Toolkit Remove
	Depressive Symptoms - Geriatric Geriatric Depression Scale (GDS) - Short Form Check all Current Age Add to Toolkit Remove
	Eating Disorder Screener for DSM-5 Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) & The Eating Disorder Diagnostic Scale (EDDS-5) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Eating Disorder Screener for DSM-IV Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), The Eating Disorder Diagnostic Scale (EDDS) Check all Body Image Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	General Distress Screener The K6 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Psychopathology Rating Scale - Clinical Brief Psychiatric Rating Scale Check all Current Age Current Marital Status Add to Toolkit Remove
	Global Psychopathology Rating Scale - Research Positive and Negative Syndrome Scale (PANSS) Check all Current Age Current Marital Status Add to Toolkit Remove
	Lack of Prosocial Emotions - Children - Preschool Parent Report Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Preschool Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Self-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Lack of Prosocial Emotions - Children - Teacher-report Version Inventory of Callous-Unemotional Traits (ICU) Remove
	Personality Traits The Big Five Inventory (BFI) Check all Current Age Add to Toolkit Remove
	Psychopathy - Adult Triarchic Psychopathy Measure (TriPM) Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4 Remove
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5 Remove
	PTSD Symptoms, Self-report - DSM 5 PTSD Checklist for DMS-5 (PCL-5) Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	PTSD Symptoms, Self-report - DSM-IV PTSD Checklist for DSM-4 Check all General Distress Screener Life Events - Child Add to Toolkit Remove
	Sleep Disorders Screener National Institute of Mental Health (NIMH), Sleep Patterns and Problems Check all Current Age Add to Toolkit Remove
	Sleep Disorders Screener - Children The Sleep Disturbance Scale for Children (SDSC) Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adolescent Symptoms of Autism Spectrum Disorders - Adolescent Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Adult The Autism Spectrum Quotient - Adult Version Check all Current Age Add to Toolkit Remove
	Symptoms of Autism Spectrum Disorders - Child The Childhood Autism Spectrum Test (CAST) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 46

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 18). Burden of Cancer on Employment. https://www.phenxtoolkit.org/protocols/view/320101

PhenX Toolkit. (2026 April 18). Chronic Medical Conditions - Self Reported. https://www.phenxtoolkit.org/protocols/view/320201

PhenX Toolkit. (2026 April 18). Cognitive Function. https://www.phenxtoolkit.org/protocols/view/320301

PhenX Toolkit. (2026 April 18). Fear of Cancer Recurrence. https://www.phenxtoolkit.org/protocols/view/320401

PhenX Toolkit. (2026 April 18). Financial Hardship Associated with Cancer. https://www.phenxtoolkit.org/protocols/view/320501

PhenX Toolkit. (2026 April 18). Functional Performance Status. https://www.phenxtoolkit.org/protocols/view/320601

PhenX Toolkit. (2026 April 18). Patient Centered Communication - Cancer. https://www.phenxtoolkit.org/protocols/view/320701

PhenX Toolkit. (2026 April 18). Patient Experience with Cancer Care - Cancer Surgery. https://www.phenxtoolkit.org/protocols/view/320801

PhenX Toolkit. (2026 April 18). Patient Experience with Cancer Care - Drug Therapy. https://www.phenxtoolkit.org/protocols/view/320802

PhenX Toolkit. (2026 April 18). Patient Experience with Cancer Care - Radiation Therapy. https://www.phenxtoolkit.org/protocols/view/320803

PhenX Toolkit. (2026 April 18). Quality of Life in Cancer Survivors - Active Treatment. https://www.phenxtoolkit.org/protocols/view/320901

PhenX Toolkit. (2026 April 18). Quality of Life in Cancer Survivors - Long-term. https://www.phenxtoolkit.org/protocols/view/320902

PhenX Toolkit. (2026 April 18). Spirituality in Chronic Illness. https://www.phenxtoolkit.org/protocols/view/321001

PhenX Toolkit. (2026 April 18). Supportive Care Needs - Cancer. https://www.phenxtoolkit.org/protocols/view/321101

PhenX Toolkit. (2026 April 18). Unmet Needs of Cancer Survivors. https://www.phenxtoolkit.org/protocols/view/321201

PhenX Toolkit. (2026 April 18). Anxiety Disorders Screener - Adult. https://www.phenxtoolkit.org/protocols/view/120203

PhenX Toolkit. (2026 April 18). Anxiety Disorders Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121803

PhenX Toolkit. (2026 April 18). Anxiety Disorders Symptoms - Children - Parent Report. https://www.phenxtoolkit.org/protocols/view/121801

PhenX Toolkit. (2026 April 18). Anxiety Disorders Symptoms - Children - Self-Report. https://www.phenxtoolkit.org/protocols/view/121802

PhenX Toolkit. (2026 April 18). Attention-Deficit Hyperactivity Disorder Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121501

PhenX Toolkit. (2026 April 18). Attention-Deficit Hyperactivity Disorder Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121502

PhenX Toolkit. (2026 April 18). Depression Screener - Adults. https://www.phenxtoolkit.org/protocols/view/120503

PhenX Toolkit. (2026 April 18). Depressive Symptoms - Adult. https://www.phenxtoolkit.org/protocols/view/121701

PhenX Toolkit. (2026 April 18). Depressive Symptoms - Child. https://www.phenxtoolkit.org/protocols/view/121702

PhenX Toolkit. (2026 April 18). Depressive Symptoms - Depression in Dementia. https://www.phenxtoolkit.org/protocols/view/121703

PhenX Toolkit. (2026 April 18). Depressive Symptoms - Geriatric. https://www.phenxtoolkit.org/protocols/view/121704

PhenX Toolkit. (2026 April 18). Eating Disorder Screener for DSM-5. https://www.phenxtoolkit.org/protocols/view/120602

PhenX Toolkit. (2026 April 18). Eating Disorder Screener for DSM-IV. https://www.phenxtoolkit.org/protocols/view/120601

PhenX Toolkit. (2026 April 18). General Distress Screener. https://www.phenxtoolkit.org/protocols/view/121301

PhenX Toolkit. (2026 April 18). Global Psychopathology Rating Scale - Clinical. https://www.phenxtoolkit.org/protocols/view/122102

PhenX Toolkit. (2026 April 18). Global Psychopathology Rating Scale - Research. https://www.phenxtoolkit.org/protocols/view/122101

PhenX Toolkit. (2026 April 18). Lack of Prosocial Emotions - Children - Preschool Parent Report. https://www.phenxtoolkit.org/protocols/view/121602

PhenX Toolkit. (2026 April 18). Lack of Prosocial Emotions - Children - Preschool Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121603

PhenX Toolkit. (2026 April 18). Lack of Prosocial Emotions - Children - Self-report Version. https://www.phenxtoolkit.org/protocols/view/121604

PhenX Toolkit. (2026 April 18). Lack of Prosocial Emotions - Children - Teacher-report Version. https://www.phenxtoolkit.org/protocols/view/121605

PhenX Toolkit. (2026 April 18). Personality Traits. https://www.phenxtoolkit.org/protocols/view/121101

PhenX Toolkit. (2026 April 18). Psychopathy - Adult. https://www.phenxtoolkit.org/protocols/view/121601

PhenX Toolkit. (2026 April 18). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4. https://www.phenxtoolkit.org/protocols/view/121902

PhenX Toolkit. (2026 April 18). PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5. https://www.phenxtoolkit.org/protocols/view/121901

PhenX Toolkit. (2026 April 18). PTSD Symptoms, Self-report - DSM 5. https://www.phenxtoolkit.org/protocols/view/122002

PhenX Toolkit. (2026 April 18). PTSD Symptoms, Self-report - DSM-IV. https://www.phenxtoolkit.org/protocols/view/122001

PhenX Toolkit. (2026 April 18). Sleep Disorders Screener. https://www.phenxtoolkit.org/protocols/view/121001

PhenX Toolkit. (2026 April 18). Sleep Disorders Screener - Children. https://www.phenxtoolkit.org/protocols/view/121002

PhenX Toolkit. (2026 April 18). Symptoms of Autism Spectrum Disorders - Adolescent. https://www.phenxtoolkit.org/protocols/view/120902

PhenX Toolkit. (2026 April 18). Symptoms of Autism Spectrum Disorders - Adult. https://www.phenxtoolkit.org/protocols/view/120901

PhenX Toolkit. (2026 April 18). Symptoms of Autism Spectrum Disorders - Child. https://www.phenxtoolkit.org/protocols/view/120903

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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