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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 78
	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener, Self-reported Version Check all Current Age Add to Toolkit Remove
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener, Proxy-reported Version Check all Current Age Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Direct Assessment - Adolescent The Trail Making Test (TMT) for Older Children Remove
	Executive Function - Direct Assessment - Adult The Trail Making Test (TMT) Remove
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®) - Preschool Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©) Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ®-3) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Older Children and Adolescents Childrens Global Assessment Scale (CGAS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS) Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID) Check all Current Age Add to Toolkit Remove
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score Check all Current Age Add to Toolkit Remove
	Nonverbal Reasoning Ravens Progressive Matrices Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011 Check all Current Age Add to Toolkit Remove
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS) Check all Current Age Add to Toolkit Remove
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale Check all Current Age Add to Toolkit Remove
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Color Vision The Neitz Test of Color Vision Remove
	Contact Biometry University of Southern California, The Los Angeles Latino Eye Study (LALES), 2000-2003 Remove
	Contact Lens Use- Adult National Eye Institute, Herpetic Eye Disease Study II, (HEDS II), Recurrence Factors Study Enrollment Checklist, 12/1/95 Check all Current Age Add to Toolkit Remove
	Dry Eye Syndrome Centre for Vision Research, Blue Mountains Eye Study (BMES-3), 2002-2004 Remove
	Eye Diseases and Treatment in Young Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Eye Drop Use Beaver Dam Eye Study Remove
	Eye Patching The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Intraocular Pressure University of Southern California, The Los Angeles Latino Eye Study (LALES), 2000-2003 Remove
	Ocular Exposure to Ultraviolet Light National Eye Institute (NEI), Age-Related Eye Disease Study (AREDS), Phase II, Sunlight Exposure Questionnaire, 2/9/1996 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008 Remove
	Refractive Error - Adult University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003 Check all Current Age Add to Toolkit Remove
	Refractive Error - Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Retinal Digital Photography National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008 Remove
	Use of Eye Glasses- Adult Centre for Vision Research, Blue Mountains Eye Study- 3 (BMES-3), 2002-2004 Check all Current Age Add to Toolkit Remove
	Use of Glasses and/or Contact Lenses as a Child The Centre for Vision Research, Sydney Myopia Study, 2005 Check all Current Age Add to Toolkit Remove
	Visual Acuity National Eye Institute (NEI), Early Treatment Diabetic Retinopathy Study (ETDRS), 1979-1989 Remove
	Visual Function Vision Function Questionnaire (VFQ-25) Remove
	Chronic Stress The Chronic Stress Scale Check all Current Age Current Marital Status Household Roster-Relationships Life Events - Adult Life Events - Child Add to Toolkit Remove
	Coping Styles - Adolescent The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Coping Styles - Adult The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adolescent Huizinga, D., et al, Are there multiple paths to delinquency?, J CRIM LAW CRIM, 1991 Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adult Dunedin Multidisciplinary Health and Development Research Unit (DMHDRU), Dunedin Multidisciplinary Health and Development Study, 1993 Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Adolescent and Adult UPPS Impulsive Behavior Scale Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Child UPPS-P Impulsive Behavior Scale for Children Check all Current Age Add to Toolkit Remove
	Emotional State - Adult Check all Current Age Add to Toolkit Remove
	Emotional State - Child Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Adult Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Child Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adolescent NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 13-17) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adult NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 18+) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child Parent Report NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Parent Report Check all Current Age Add to Toolkit Remove
	Perceived Social Support Conflict Midlife in the United States II (MIDUS II) Check all Current Age Add to Toolkit Remove
	Perceived Stress Perceived Stress Scale Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Current Age Add to Toolkit Remove
	Self-esteem The Rosenberg Self-Esteem Scale Check all Current Age Add to Toolkit Remove
	Social Capital The Position Generator Check all Current Age Add to Toolkit Remove
	Social Isolation UCLA Loneliness Scale Check all Current Age Add to Toolkit Remove
	Temperament - Adolescent Early Adolescent Temperament Questionnaire (EATQ-R) Check all Current Age Add to Toolkit Remove
	Temperament - Adult Adult Temperament Questionnaire (ATQ) Check all Current Age Add to Toolkit Remove
	Temperament - Child Childrens Behavior Questionnaire-Very Short Form (CBQ-VSF) Check all Current Age Add to Toolkit Remove
	Temperament - Early Childhood Early Childhood Behavior Questionnaire (ECBQ) Check all Current Age Add to Toolkit Remove
	Temperament - Infant Infant Behavior Questionnaire-Revised (IBQ-R) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 78

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 18). Epilepsy Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130401

PhenX Toolkit. (2026 April 18). Epilepsy Screener - Child/Proxy. https://www.phenxtoolkit.org/protocols/view/130402

PhenX Toolkit. (2026 April 18). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2026 April 18). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2026 April 18). Executive Function - Direct Assessment - Adolescent. https://www.phenxtoolkit.org/protocols/view/131601

PhenX Toolkit. (2026 April 18). Executive Function - Direct Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/131602

PhenX Toolkit. (2026 April 18). Executive Function - Questionnaire - Adult. https://www.phenxtoolkit.org/protocols/view/131501

PhenX Toolkit. (2026 April 18). Executive Function - Questionnaire - Children. https://www.phenxtoolkit.org/protocols/view/131502

PhenX Toolkit. (2026 April 18). Executive Function - Questionnaire - Preschool Children. https://www.phenxtoolkit.org/protocols/view/131503

PhenX Toolkit. (2026 April 18). Global Mental Status Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130701

PhenX Toolkit. (2026 April 18). Global Mental Status Screener - Child. https://www.phenxtoolkit.org/protocols/view/130702

PhenX Toolkit. (2026 April 18). Global Mental Status Screener - Older Children and Adolescents. https://www.phenxtoolkit.org/protocols/view/130703

PhenX Toolkit. (2026 April 18). Gross Motor Function - 2-4 Years Old. https://www.phenxtoolkit.org/protocols/view/131201

PhenX Toolkit. (2026 April 18). Gross Motor Function - 4-6 Years Old. https://www.phenxtoolkit.org/protocols/view/131202

PhenX Toolkit. (2026 April 18). Gross Motor Function - 6-12 Years Old. https://www.phenxtoolkit.org/protocols/view/131203

PhenX Toolkit. (2026 April 18). History of Head Trauma. https://www.phenxtoolkit.org/protocols/view/130601

PhenX Toolkit. (2026 April 18). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 April 18). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2026 April 18). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2026 April 18). Neuropathy - Autonomic Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/130202

PhenX Toolkit. (2026 April 18). Neuropathy - Clinical Assessment. https://www.phenxtoolkit.org/protocols/view/130201

PhenX Toolkit. (2026 April 18). Nonverbal Reasoning. https://www.phenxtoolkit.org/protocols/view/131701

PhenX Toolkit. (2026 April 18). Parkinsons Disease Screener - Questionnaire. https://www.phenxtoolkit.org/protocols/view/131901

PhenX Toolkit. (2026 April 18). Parkinsons Disease Symptoms. https://www.phenxtoolkit.org/protocols/view/130102

PhenX Toolkit. (2026 April 18). Signs of Essential Tremor. https://www.phenxtoolkit.org/protocols/view/131301

PhenX Toolkit. (2026 April 18). Spatial Reasoning - Adolescents and Adults. https://www.phenxtoolkit.org/protocols/view/131801

PhenX Toolkit. (2026 April 18). Symptoms of Restless Legs Syndrome. https://www.phenxtoolkit.org/protocols/view/131401

PhenX Toolkit. (2026 April 18). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2026 April 18). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2026 April 18). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2026 April 18). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2026 April 18). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2026 April 18). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

PhenX Toolkit. (2026 April 18). Color Vision. https://www.phenxtoolkit.org/protocols/view/110201

PhenX Toolkit. (2026 April 18). Contact Biometry. https://www.phenxtoolkit.org/protocols/view/110101

PhenX Toolkit. (2026 April 18). Contact Lens Use- Adult. https://www.phenxtoolkit.org/protocols/view/111301

PhenX Toolkit. (2026 April 18). Dry Eye Syndrome. https://www.phenxtoolkit.org/protocols/view/110301

PhenX Toolkit. (2026 April 18). Eye Diseases and Treatment in Young Children. https://www.phenxtoolkit.org/protocols/view/110401

PhenX Toolkit. (2026 April 18). Eye Drop Use. https://www.phenxtoolkit.org/protocols/view/110501

PhenX Toolkit. (2026 April 18). Eye Patching. https://www.phenxtoolkit.org/protocols/view/110601

PhenX Toolkit. (2026 April 18). Intraocular Pressure. https://www.phenxtoolkit.org/protocols/view/110701

PhenX Toolkit. (2026 April 18). Ocular Exposure to Ultraviolet Light. https://www.phenxtoolkit.org/protocols/view/110801

PhenX Toolkit. (2026 April 18). Personal and Family History of Eye Disease and Treatments. https://www.phenxtoolkit.org/protocols/view/110901

PhenX Toolkit. (2026 April 18). Personal and Family History of Strabismus. https://www.phenxtoolkit.org/protocols/view/111001

PhenX Toolkit. (2026 April 18). Refractive Error - Adult. https://www.phenxtoolkit.org/protocols/view/111401

PhenX Toolkit. (2026 April 18). Refractive Error - Children. https://www.phenxtoolkit.org/protocols/view/111402

PhenX Toolkit. (2026 April 18). Retinal Digital Photography. https://www.phenxtoolkit.org/protocols/view/111501

PhenX Toolkit. (2026 April 18). Use of Eye Glasses- Adult. https://www.phenxtoolkit.org/protocols/view/111303

PhenX Toolkit. (2026 April 18). Use of Glasses and/or Contact Lenses as a Child. https://www.phenxtoolkit.org/protocols/view/111302

PhenX Toolkit. (2026 April 18). Visual Acuity. https://www.phenxtoolkit.org/protocols/view/111101

PhenX Toolkit. (2026 April 18). Visual Function. https://www.phenxtoolkit.org/protocols/view/111201

PhenX Toolkit. (2026 April 18). Chronic Stress. https://www.phenxtoolkit.org/protocols/view/181301

PhenX Toolkit. (2026 April 18). Coping Styles - Adolescent. https://www.phenxtoolkit.org/protocols/view/180201

PhenX Toolkit. (2026 April 18). Coping Styles - Adult. https://www.phenxtoolkit.org/protocols/view/180202

PhenX Toolkit. (2026 April 18). Crime and Delinquency - Adolescent. https://www.phenxtoolkit.org/protocols/view/181201

PhenX Toolkit. (2026 April 18). Crime and Delinquency - Adult. https://www.phenxtoolkit.org/protocols/view/181202

PhenX Toolkit. (2026 April 18). Disinhibiting Behaviors - Impulsivity - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/180401

PhenX Toolkit. (2026 April 18). Disinhibiting Behaviors - Impulsivity - Child. https://www.phenxtoolkit.org/protocols/view/180402

PhenX Toolkit. (2026 April 18). Emotional State - Adult. https://www.phenxtoolkit.org/protocols/view/180501

PhenX Toolkit. (2026 April 18). Emotional State - Child. https://www.phenxtoolkit.org/protocols/view/180502

PhenX Toolkit. (2026 April 18). Exposures to Violence, Trauma, and Victimization - Adult. https://www.phenxtoolkit.org/protocols/view/181401

PhenX Toolkit. (2026 April 18). Exposures to Violence, Trauma, and Victimization - Child. https://www.phenxtoolkit.org/protocols/view/181402

PhenX Toolkit. (2026 April 18). General Self-efficacy - Adolescent. https://www.phenxtoolkit.org/protocols/view/180604

PhenX Toolkit. (2026 April 18). General Self-efficacy - Adult. https://www.phenxtoolkit.org/protocols/view/180606

PhenX Toolkit. (2026 April 18). General Self-efficacy - Child. https://www.phenxtoolkit.org/protocols/view/180603

PhenX Toolkit. (2026 April 18). General Self-efficacy - Child Parent Report. https://www.phenxtoolkit.org/protocols/view/180605

PhenX Toolkit. (2026 April 18). Perceived Social Support Conflict. https://www.phenxtoolkit.org/protocols/view/180701

PhenX Toolkit. (2026 April 18). Perceived Stress. https://www.phenxtoolkit.org/protocols/view/180801

PhenX Toolkit. (2026 April 18). Quality of Life Enjoyment and Satisfaction - Adult. https://www.phenxtoolkit.org/protocols/view/180302

PhenX Toolkit. (2026 April 18). Quality of Life Enjoyment and Satisfaction - Children. https://www.phenxtoolkit.org/protocols/view/180303

PhenX Toolkit. (2026 April 18). Self-esteem. https://www.phenxtoolkit.org/protocols/view/180901

PhenX Toolkit. (2026 April 18). Social Capital. https://www.phenxtoolkit.org/protocols/view/181501

PhenX Toolkit. (2026 April 18). Social Isolation. https://www.phenxtoolkit.org/protocols/view/181001

PhenX Toolkit. (2026 April 18). Temperament - Adolescent. https://www.phenxtoolkit.org/protocols/view/181104

PhenX Toolkit. (2026 April 18). Temperament - Adult. https://www.phenxtoolkit.org/protocols/view/181105

PhenX Toolkit. (2026 April 18). Temperament - Child. https://www.phenxtoolkit.org/protocols/view/181101

PhenX Toolkit. (2026 April 18). Temperament - Early Childhood. https://www.phenxtoolkit.org/protocols/view/181102

PhenX Toolkit. (2026 April 18). Temperament - Infant. https://www.phenxtoolkit.org/protocols/view/181103

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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