My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 49
	Nicotine Content Tobacco Laboratory, Nicotine (Total and Unprotonated), Version 03 Remove
	Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars Massachusetts Benchmark Study (MBS), 1999 Remove
	Physical Properties of Tobacco Products - Smokeless Tobacco Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009 Remove
	Tobacco Brand and Variety - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022) Check all Use of Tobacco Products Add to Toolkit Remove
	Tobacco Warning Label Exposure and Recall Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022) & International Tobacco Control 4-Country Survey, 2015 Remove
	Passive Exposures to Tobacco Products Check all Passive Smoke Exposure Add to Toolkit Remove
	Tobacco Brand and Variety - Cigars Current Population Survey (CPS), Tobacco Supplement, 2018-2019, Population Assessment of Tobacco and Health (PATH) Study Wave 7 Check all Use of Tobacco Products Add to Toolkit Remove
	Tobacco Brand and Variety - Cigarettes National Survey on Drug Use and Health (NSDUH), 2021, Population Assessment of Tobacco and Health (PATH) Study Wave 7 Check all Use of Tobacco Products Add to Toolkit Remove
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Height - Knee Height National Health and Nutrition Examination Survey III (NHANES III), Body Measurements, 1988 Check all Current Age Add to Toolkit Remove
	Pulse Oximetry (Rest) World Health Organization (WHO), Pulse oximetry training manual, 2011 Check all Current Age Add to Toolkit Remove
	Hemoglobin Characterization Association of Public Health Laboratories (APHL) Check all Complete Blood Count (CBC) Current Age History of Transfusion Medication Inventory Reticulocyte Count Add to Toolkit Remove
	Complete Blood Count (CBC) National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010 Check all Current Age History of Transfusion Medication Inventory Add to Toolkit Remove
	Height - Self-Reported Height National Health and Nutritional Examination Survey (NHANES) Weight History Questionnaire, 2019-2020 Check all Current Age Add to Toolkit Remove
	Current Age National Health and Nutrition Examination Survey (NHANES), 2019-2020 Remove
	Weight - Measured Weight National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Weight - Self-Reported Weight National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2019-2020 Check all Current Age Add to Toolkit Remove
	Height - Recumbent Length National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Height - Standing Height National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023 Check all Current Age Add to Toolkit Remove
	Sickle Cell Pain Burden Interview Sickle Cell Pain Burden Interview (SCPBI) Check all Medications (Current and Past Use of Pain Relievers, Statins, and Steroids) Add to Toolkit Remove
	Pain Catastrophizing - Adult Pain Catastrophizing Scale Remove
	Pain Catastrophizing - Child Pain Catastrophizing Scale - Child Version (PCS-C) Remove
	Pain Catastrophizing - Parent Proxy Pain Catastrophizing Scale - Parent Version (PCS-P) Remove
	Pain Coping - Adult Coping Strategies Questionnaire Remove
	Pain Coping - Child Pain Coping Questionnaire - Short Form Remove
	Pain Intensity - Adolescent and Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a Remove
	Pain Intensity - Child Faces Pain Scale-Revised (FPS-R) Remove
	Pain Intensity - Toddler Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool Check all Current Age Add to Toolkit Remove
	Pain Interference - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Item Bank v1.1 - Pain Interference - Short Form 8a Remove
	Pain Interference - Child Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Pain Interference - Parent Proxy Patient-Reported Outcome Measurement Information System (PROMIS^®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Sickle Cell Disease Pain Location Body Map - Adult Sickle Cell Pain Diary Check all Current Age Add to Toolkit Remove
	Pain Location Body Map - Child Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart Check all Current Age Add to Toolkit Remove
	Pain Quality Descriptors (Affective) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a Remove
	Pain Quality Descriptors (Sensory) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a Remove
	Pain Quality Descriptors (Nociceptive) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Nociceptive Pain Quality 5a Remove
	Pain Quality Descriptors (Neuropathic) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Neuropathic Pain Quality 5a Remove
	Patient Global Impression of Change Patient Global Impression of Change (PGIC) Remove
	Physical Mobility - Adult Patient-Reported Outcomes Measurement Information System^® (PROMIS) Item Bank v2.1 - Mobility Remove
	Physical Mobility - Child Patient-Reported Outcomes Measurement Information System^® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a Remove
	Physical Mobility - Hospitalized Individuals Youth Acute Pain Functional Ability Questionnaire (YAPFAQ) Remove
	Hydroxyurea Adherence - Prospective Studies THromboprophylaxis In Sickle cell disease with central venous catheters (THIS-1) Remove
	Acute Chest Syndrome - Pregnancy Malinowski AK, et al. Distinct maternal and fetal pregnancy outcomes in women with sickle cell disease can be predicted using routine clinical and laboratory data. Br J Haematol. 2021 Sickle Cell Disease Obstetric Multi-Disciplinary Care Programme: Prospective Multi-Centre Cohort Study (SCOB-II). Check all Chest X-ray Add to Toolkit Remove
	Prophylactic Transfusion during Pregnancy Malinowski AK, et al. Prophylactic transfusion for pregnant women with sickle cell disease: a systematic review and meta-analysis. Blood. 2015 Oakley LL, et al. Serial prophylactic exchange blood transfusion in pregnant women with sickle cell disease (TAPS-2): study protocol for a randomised controlled feasibility trial. Trials. 2020 Remove
	Thromboprophylaxis Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS) Remove
	Thrombosis - Catheter-related Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS) Remove
	Thrombosis - Venous - non-catheter-related Cure Sickle Cell Initiative (CureSCi), F2909 Medical History Core Form, SCD Version 1.0 Check all Current Age Add to Toolkit Remove
	Transfusion Indications Silent Cerebral Infarct Transfusion (SIT) Trial, S31r4 Transfusion Form Check all Current Age Hemoglobin Characterization Add to Toolkit Remove
	Transfusion Reactions Silent Cerebral Infarct Transfusion (SIT) Trial, S32r0 Transfusion Reaction Form Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 49

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 April 19). Nicotine Content. https://www.phenxtoolkit.org/protocols/view/730301

PhenX Toolkit. (2026 April 19). Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars. https://www.phenxtoolkit.org/protocols/view/730501

PhenX Toolkit. (2026 April 19). Physical Properties of Tobacco Products - Smokeless Tobacco. https://www.phenxtoolkit.org/protocols/view/730502

PhenX Toolkit. (2026 April 19). Tobacco Brand and Variety - Smokeless Tobacco. https://www.phenxtoolkit.org/protocols/view/730704

PhenX Toolkit. (2026 April 19). Tobacco Warning Label Exposure and Recall. https://www.phenxtoolkit.org/protocols/view/730902

PhenX Toolkit. (2026 April 19). Passive Exposures to Tobacco Products. https://www.phenxtoolkit.org/protocols/view/730402

PhenX Toolkit. (2026 April 19). Tobacco Brand and Variety - Cigars. https://www.phenxtoolkit.org/protocols/view/730707

PhenX Toolkit. (2026 April 19). Tobacco Brand and Variety - Cigarettes. https://www.phenxtoolkit.org/protocols/view/730708

PhenX Toolkit. (2026 April 19). Ethnicity and Race. https://www.phenxtoolkit.org/protocols/view/11901

PhenX Toolkit. (2026 April 19). Height - Knee Height. https://www.phenxtoolkit.org/protocols/view/20701

PhenX Toolkit. (2026 April 19). Pulse Oximetry (Rest). https://www.phenxtoolkit.org/protocols/view/91102

PhenX Toolkit. (2026 April 19). Hemoglobin Characterization. https://www.phenxtoolkit.org/protocols/view/830302

PhenX Toolkit. (2026 April 19). Complete Blood Count (CBC). https://www.phenxtoolkit.org/protocols/view/220501

PhenX Toolkit. (2026 April 19). Height - Self-Reported Height. https://www.phenxtoolkit.org/protocols/view/20707

PhenX Toolkit. (2026 April 19). Current Age. https://www.phenxtoolkit.org/protocols/view/10102

PhenX Toolkit. (2026 April 19). Weight - Measured Weight. https://www.phenxtoolkit.org/protocols/view/21503

PhenX Toolkit. (2026 April 19). Weight - Self-Reported Weight. https://www.phenxtoolkit.org/protocols/view/21504

PhenX Toolkit. (2026 April 19). Height - Recumbent Length. https://www.phenxtoolkit.org/protocols/view/20705

PhenX Toolkit. (2026 April 19). Height - Standing Height. https://www.phenxtoolkit.org/protocols/view/20706

PhenX Toolkit. (2026 April 19). Sickle Cell Pain Burden Interview. https://www.phenxtoolkit.org/protocols/view/860101

PhenX Toolkit. (2026 April 19). Pain Catastrophizing - Adult. https://www.phenxtoolkit.org/protocols/view/860201

PhenX Toolkit. (2026 April 19). Pain Catastrophizing - Child. https://www.phenxtoolkit.org/protocols/view/860202

PhenX Toolkit. (2026 April 19). Pain Catastrophizing - Parent Proxy. https://www.phenxtoolkit.org/protocols/view/860203

PhenX Toolkit. (2026 April 19). Pain Coping - Adult. https://www.phenxtoolkit.org/protocols/view/860301

PhenX Toolkit. (2026 April 19). Pain Coping - Child. https://www.phenxtoolkit.org/protocols/view/860302

PhenX Toolkit. (2026 April 19). Pain Intensity - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/860401

PhenX Toolkit. (2026 April 19). Pain Intensity - Child. https://www.phenxtoolkit.org/protocols/view/860402

PhenX Toolkit. (2026 April 19). Pain Intensity - Toddler. https://www.phenxtoolkit.org/protocols/view/860403

PhenX Toolkit. (2026 April 19). Pain Interference - Adult. https://www.phenxtoolkit.org/protocols/view/860501

PhenX Toolkit. (2026 April 19). Pain Interference - Child. https://www.phenxtoolkit.org/protocols/view/860502

PhenX Toolkit. (2026 April 19). Pain Interference - Parent Proxy. https://www.phenxtoolkit.org/protocols/view/860503

PhenX Toolkit. (2026 April 19). Sickle Cell Disease Pain Location Body Map - Adult. https://www.phenxtoolkit.org/protocols/view/860601

PhenX Toolkit. (2026 April 19). Pain Location Body Map - Child. https://www.phenxtoolkit.org/protocols/view/860602

PhenX Toolkit. (2026 April 19). Pain Quality Descriptors (Affective) - Children. https://www.phenxtoolkit.org/protocols/view/860701

PhenX Toolkit. (2026 April 19). Pain Quality Descriptors (Sensory) - Children. https://www.phenxtoolkit.org/protocols/view/860702

PhenX Toolkit. (2026 April 19). Pain Quality Descriptors (Nociceptive) - Adult. https://www.phenxtoolkit.org/protocols/view/860703

PhenX Toolkit. (2026 April 19). Pain Quality Descriptors (Neuropathic) - Adult. https://www.phenxtoolkit.org/protocols/view/860704

PhenX Toolkit. (2026 April 19). Patient Global Impression of Change. https://www.phenxtoolkit.org/protocols/view/860801

PhenX Toolkit. (2026 April 19). Physical Mobility - Adult. https://www.phenxtoolkit.org/protocols/view/860901

PhenX Toolkit. (2026 April 19). Physical Mobility - Child. https://www.phenxtoolkit.org/protocols/view/860902

PhenX Toolkit. (2026 April 19). Physical Mobility - Hospitalized Individuals. https://www.phenxtoolkit.org/protocols/view/860903

PhenX Toolkit. (2026 April 19). Hydroxyurea Adherence - Prospective Studies. https://www.phenxtoolkit.org/protocols/view/890801

PhenX Toolkit. (2026 April 19). Acute Chest Syndrome - Pregnancy. https://www.phenxtoolkit.org/protocols/view/890601

PhenX Toolkit. (2026 April 19). Prophylactic Transfusion during Pregnancy. https://www.phenxtoolkit.org/protocols/view/890301

PhenX Toolkit. (2026 April 19). Thromboprophylaxis. https://www.phenxtoolkit.org/protocols/view/890101

PhenX Toolkit. (2026 April 19). Thrombosis - Catheter-related. https://www.phenxtoolkit.org/protocols/view/890201

PhenX Toolkit. (2026 April 19). Thrombosis - Venous - non-catheter-related. https://www.phenxtoolkit.org/protocols/view/890202

PhenX Toolkit. (2026 April 19). Transfusion Indications. https://www.phenxtoolkit.org/protocols/view/890401

PhenX Toolkit. (2026 April 19). Transfusion Reactions. https://www.phenxtoolkit.org/protocols/view/890501

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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